Six months from the time of Sydney's second, most critical, seizure and nary a sign of any more seizures; lest any that we could tell. Here comes the but, as buts always do. But, one night while visiting the great-grandparents in Port Allegany, something happened. It was a hot day in May and we moved inside to get some relief from the heat. As we sat there in the great-grandparents living room Sydney, now 18 months, toddled on over to me and wanted picked up.As I picked her up I felt that she was quite warm, and then immediately knew something was wrong. Her back, as she lay in my lap, gave a funny spasm and then the same blank lifeless stayer as before. A glazed look gave no hint of a response from a normally sparkling set of eyes.
We tried to get her to respond and quickly removed her clothes hoping to cool her down. Having went six months with no seizure activity we had gotten lax, as I guess most people do, and didn't take the Diastat with us EVERYWHERE we went. We took it most times, but this was one in which we forgot. No Diastat to administer and still no response. A quick call to 911 and the fireman were at the house within minutes followed shortly by the ambulance. I again drafted the ambulance on it's way to the hospital the whole time telling myself that it would be ok; this happened before and eveything turned out alright.....right?
Once we reached the hospital I found out that the paramedic administered some rectal Valium on the way, which is basically what the Diastat was. So, mere minutes between the time we could have given it to her and the time she did receive it. Nervous agitation was met by the continued reassuring of everyone in the family that, this turned out alright before and it will again. A long wait was finally abated by the life flight team arriving. Again, I just had this feeling that we had been through this before and there was no reason to believe this would be any different. They preferred that no parents ride along in the helicopter due to closely controlled wight regulations. As before, we knew the helicopter would reach Buffalo much faster than we could by car. So, we said our goodbyes to our medically paralyzed princess and started the two hour ride to Buffalo yet again.

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